© 1995 The Gerontological Society of America
Psychiatric and Physical Morbidity Effects of Dementia Caregiving: Prevalence, Correlates, and Causes1
2 Department of Psychiatry and University Center for Social and Urban Research, University of Pittsburgh Address correspondence to Richard Schulz, PhD, UCSUR, Room 607, 121 University Place, University of Pittsburgh, PA 15260
| Abstract |
|---|
The dementia caregiving literature is reviewed with the goals of (a) assessing the prevalence and magnitude of psychiatric and physical morbidity effects among caregivers, (b) identifying individual and contextual correlates of reported health effects and their underlying causes, and (c) examining the policy relevance of observed findings. Virtually all studies report elevated levels of depressive symptomatology among caregivers, and those using diagnostic interviews report high rates of clinical depression and anxiety. The evidence is more equivocal and generally weaker for the association between caregiving and physical morbidity, such as self-rated health, number of illnesses, symptomatology, health care utilization, preventive health behaviors, and cardiovascular functioning. Across studies, psychiatric morbidity in caregivers was linked to patient problem behaviors, income, self-rated health, perceived stress, and life satisfaction. Physical morbidity was associated with patient problem behaviors and cognitive impairment, and with caregiver depression, anxiety, and perceived social support. Possible causes of reported effects and policy implications are discussed.
Keywords: Alzheimer's disease caregiving, Dementia caregiving, Psychiatric morbidity
Received December 30, 1994; Accepted June 4, 1995
1 Preparation of this article was in part supported by grants from the National Institute of Mental Health (MH46015, MH52247) and the National Institute on Aging (AG09291).
![]()
CiteULike
Connotea
Del.icio.us What's this?
This article has been cited by other articles:
![]() |
B. G. Knight and P. Sayegh Cultural Values and Caregiving: The Updated Sociocultural Stress and Coping Model J Gerontol B Psychol Sci Soc Sci, November 24, 2009; (2009) gbp096v1. [Abstract] [Full Text] [PDF] |
||||
![]() |
J. E. Gaugler, J. Linder, C. W. Given, R. Kataria, G. Tucker, and W. F. Regine Family Cancer Caregiving and Negative Outcomes: The Direct and Mediational Effects of Psychosocial Resources Journal of Family Nursing, November 1, 2009; 15(4): 417 - 444. [Abstract] [PDF] |
||||
![]() |
Y. G. Bachner, D. G. Karus, and V. H. Raveis Examining the Social Context in the Caregiving Experience: Correlates of Global Self-Esteem Among Adult Daughter Caregivers to an Older Parent With Cancer J Aging Health, October 1, 2009; 21(7): 1016 - 1039. [Abstract] [PDF] |
||||
![]() |
R. W. Law and D. A. Sbarra The Effects of Church Attendance and Marital Status on the Longitudinal Trajectories of Depressed Mood Among Older Adults J Aging Health, September 1, 2009; 21(6): 803 - 823. [Abstract] [PDF] |
||||
![]() |
C. Ghiotti The Dementia End of Life Care Project (DeLCaP): Supporting families caring for people with late stage dementia at home Dementia, August 1, 2009; 8(3): 349 - 361. [Abstract] [PDF] |
||||
![]() |
S. C. Ho, A. Chan, J. Woo, P. Chong, and A. Sham Impact of Caregiving on Health and Quality of Life: A Comparative Population-Based Study of Caregivers for Elderly Persons and Noncaregivers J Gerontol A Biol Sci Med Sci, August 1, 2009; 64A(8): 873 - 879. [Abstract] [Full Text] [PDF] |
||||
![]() |
B. Schoenmakers, F. Buntinx, and J. De Lepeleire Can pharmacological treatment of behavioural disturbances in elderly patients with dementia lower the burden of their family caregiver? Fam. Pract., August 1, 2009; 26(4): 279 - 286. [Abstract] [Full Text] [PDF] |
||||
![]() |
C. K. Holley and B. T. Mast The Impact of Anticipatory Grief on Caregiver Burden in Dementia Caregivers Gerontologist, June 1, 2009; 49(3): 388 - 396. [Abstract] [Full Text] [PDF] |
||||
![]() |
C. R. Graham, S. Banerjee, and R. S. Gill Using postal questionnaires to identify carer depression prior to initial patient contact Psychiatr. Bull., May 1, 2009; 33(5): 169 - 171. [Abstract] [Full Text] [PDF] |
||||
![]() |
J. Bookwala The Impact of Parent Care on Marital Quality and Well-Being in Adult Daughters and Sons J Gerontol B Psychol Sci Soc Sci, May 1, 2009; 64B(3): 339 - 347. [Abstract] [Full Text] [PDF] |
||||
![]() |
J. Montoro-Rodriguez, K. Kosloski, K. Kercher, and R. J. V. Montgomery The Impact of Social Embarrassment on Caregiving Distress in a Multicultural Sample of Caregivers Journal of Applied Gerontology, April 1, 2009; 28(2): 195 - 217. [Abstract] [PDF] |
||||
![]() |
C. M Connell and M. R. Janevic Effects of a Telephone-Based Exercise Intervention for Dementia Caregiving Wives: A Randomized Controlled Trial Journal of Applied Gerontology, April 1, 2009; 28(2): 171 - 194. [Abstract] [PDF] |
||||
![]() |
J. Son, A. Erno, D. G. Shea, E. E. Femia, S. H. Zarit, and M. A. Parris Stephens The Caregiver Stress Process and Health Outcomes J Aging Health, December 1, 2007; 19(6): 871 - 887. [Abstract] [PDF] |
||||
![]() |
L. Garand, M. A. Dew, B. Urda, J. H. Lingler, S. T. DeKosky, and C. F. Reynolds Marital Quality in the Context of Mild Cognitive Impairment West J Nurs Res, December 1, 2007; 29(8): 976 - 992. [Abstract] [PDF] |
||||
![]() |
Y.-F. Y. Lu and M. Wykle Relationships Between Caregiver Stress and Self-Care Behaviors in Response to Symptoms Clin Nurs Res, February 1, 2007; 16(1): 29 - 43. [Abstract] [PDF] |
||||
![]() |
R. M. Bertrand, L. Fredman, and J. Saczynski Are All Caregivers Created Equal? Stress in Caregivers to Adults With and Without Dementia J Aging Health, August 1, 2006; 18(4): 534 - 551. [Abstract] [PDF] |
||||
![]() |
S. J Czaja, R. Schulz, S. H Belle, L. D Burgio, N. Armstrong, L. N Gitlin, D. W Coon, J. Martindale-Adams, J. Klinger, and S. M Stahl Data and safety monitoring in social behavioral intervention trials: the REACH II experience Clinical Trials, April 1, 2006; 3(2): 107 - 118. [Abstract] [PDF] |
||||
![]() |
D. W. Gilley, J. J. McCann, J. L. Bienias, and D. A. Evans Caregiver Psychological Adjustment and Institutionalization of Persons With Alzheimer's Disease J Aging Health, April 1, 2005; 17(2): 172 - 189. [Abstract] [PDF] |
||||
![]() |
K. M. Robinson, K. C. Buckwalter, and D. Reed Predictors of Use of Services Among Dementia Caregivers West J Nurs Res, March 1, 2005; 27(2): 126 - 140. [Abstract] [PDF] |
||||
![]() |
K. Larsson, M. Thorslund, and Y. Forsell Dementia and Depressive Symptoms as Predictors of Home Help Utilization Among the Oldest Old: Population-Based Study in an Urban Area of Sweden J Aging Health, November 1, 2004; 16(5): 641 - 668. [Abstract] [PDF] |
||||
![]() |
E. E. Lee and C. J. Farran Depression among Korean, Korean American, and Caucasian American Family Caregivers J Transcult Nurs, January 1, 2004; 15(1): 18 - 25. [Abstract] [PDF] |
||||
![]() |
N. O'rourke, P. Cappeliez, and S. Guindon Depressive Symptoms and Physical Health of Caregivers of Persons with Cognitive Impairment: Analysis of Reciprocal Effects Over Time J Aging Health, November 1, 2003; 15(4): 688 - 712. [Abstract] [PDF] |
||||
![]() |
C. D. Caron and B. J. Bowers Deciding Whether to Continue, Share, or Relinquish Caregiving: Caregiver Views Qual Health Res, November 1, 2003; 13(9): 1252 - 1271. [Abstract] [PDF] |
||||
![]() |
M. Boustani, B. Peterson, L. Hanson, R. Harris, and K. N. Lohr Screening for Dementia in Primary Care: A Summary of the Evidence for the U.S. Preventive Services Task Force Ann Intern Med, June 3, 2003; 138(11): 927 - 937. [Abstract] [Full Text] [PDF] |
||||
![]() |
L. Albinsson and P. Strang Differences in supporting families of dementia patients and cancer patients: a palliative perspective Palliative Medicine, June 1, 2003; 17(4): 359 - 367. [Abstract] [PDF] |
||||
![]() |
J. H.T. Karlawish and C. M. Clark Diagnostic Evaluation of Elderly Patients with Mild Memory Problems Ann Intern Med, March 4, 2003; 138(5): 411 - 419. [Abstract] [Full Text] [PDF] |
||||
![]() |
M. A. Liken Managing Transitions and Placement of Caring for a Relative With Alzheimer's Disease Home Health Care Management Practice, December 1, 2001; 14(1): 31 - 39. [Abstract] [PDF] |
||||
![]() |
D. R. Kuhn and C. F. M. de Leon Evaluating an Educational Intervention With Relatives of Persons in the Early Stages of Alzheimer's Disease Research on Social Work Practice, September 1, 2001; 11(5): 531 - 548. [Abstract] [PDF] |
||||
![]() |
M. A. Liken Critical Incidents Precipitating Institutionalization of a Relative with Alzheimer's West J Nurs Res, March 1, 2001; 23(2): 163 - 178. [Abstract] [PDF] |
||||
![]() |
H. K. Butcher, P. A. Holkup, and K. C. Buckwalter The Experience of Caring for a Family Member with Alzheimer's Disease West J Nurs Res, February 1, 2001; 23(1): 33 - 55. [Abstract] [PDF] |
||||
![]() |
K. Vedhara, N. Shanks, G. Wilcock, and S. L. Lightman Correlates and Predictors of Self-reported Psychological and Physical Morbidity in Chronic Caregiver Stress J Health Psychol, January 1, 2001; 6(1): 101 - 119. [Abstract] [PDF] |
||||
![]() |
R. J. V. Montgomery The Family Role in the Context of Long-Term Care J Aging Health, August 1, 1999; 11(3): 383 - 416. [Abstract] [PDF] |
||||
![]() |
A. M. Steffen, L. W. Thompson, D. Gallagher-Thompson, and D. Koin Physical and Psychosocial Correlates of Hormone Replacement Therapy with Chronically Stressed Postmenopausal Women J Aging Health, February 1, 1999; 11(1): 3 - 26. [Abstract] [PDF] |
||||
![]() |
G. W. Small, P. V. Rabins, P. P. Barry, N. S. Buckholtz, S. T. DeKosky, S. H. Ferris, S. I. Finkel, L. P. Gwyther, Z. S. Khachaturian, B. D. Lebowitz, et al. Diagnosis and Treatment of Alzheimer Disease and Related Disorders: Consensus Statement of the American Association for Geriatric Psychiatry, the Alzheimer's Association, and the American Geriatrics Society JAMA, October 22, 1997; 278(16): 1363 - 1371. [Abstract] [PDF] |
||||
![]() |
M. P. Gallant and C. M Connell Predictors of Decreased Self-Care among Spouse Caregivers of Older Adults with Dementing Illnesses J Aging Health, August 1, 1997; 9(3): 373 - 395. [Abstract] [PDF] |
||||
![]() |
C. J. Wehilatch, L. F. Feinberg, and D. S. Sebesta Depression and Health in Family Caregivers: Adaptation over Time J Aging Health, May 1, 1997; 9(2): 222 - 243. [Abstract] [PDF] |
||||



















