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The Gerontologist 1988 28(Suppl):32-38; doi:10.1093/geront/28.Suppl.32
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© 1988 The Gerontological Society of America

Nursing Home Resident Participation in Medical Decisions: Perceptions and Preferences1

Terrie Wetle, PhD2, Sue Levkoff, ScD3, Julie Cwikel, PhD4 and Amy Rosen, PhD5

2 Division on Aging, Department of Medicine and Division of Health Policy Research and Education, Harvard Medical School 641 Huntington Avenue, Boston, MA 02115
3 Division on Aging, Department of Social Medicine and Division of Health Policy Research and Education, Harvard Medical School
4 Department of Social Work, Ben Curion University of the Neqev and Brookdale Institute of Gerontology and Adult Human Development in Israel Jerusalem, Israel
5 Division on Aging, Harvard Medical School


  Abstract

In nine facilities, 198 nursing home residents and their 34 primary nurse caregivers were interviewed regarding perceptions and preferences of resident participation in health care decisions. Approximately 40% of residents reported being told everything about their medical conditions, whereas another 40% reported being told nothing. About two-thirds believed the information received was adequate and one-third believed it to be inadequate. Concordance between residents' and nurses' perceptions was low. Nurses overestimated the amount and adequacy of information residents received.

Keywords: Do not resuscitate (DNR orders), Attitudes, Long term care, Nursing

1 The authors gratefully acknowledge support for this research provided by the Retirement Research Foundation.


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