Skip Navigation

The Gerontologist 1987 27(5):616-626; doi:10.1093/geront/27.5.616
This Article
Right arrow Full Text (PDF)
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Alert me to new issues of the journal
Right arrow Add to My Personal Archive
Right arrow Download to citation manager
Right arrowRequest Permissions
Google Scholar
Right arrow Articles by Stone, R.
Right arrow Articles by Sangl, J.
Right arrow Search for Related Content
PubMed
Right arrow Articles by Stone, R.
Right arrow Articles by Sangl, J.
Social Bookmarking
 Add to CiteULike   Add to Connotea   Add to Del.icio.us  
What's this?

© 1987 The Gerontological Society of America

Caregivers of the Frail Elderly: A National Profile1

Dr. Robyn Stone, PH2, Gail Lee Cafferata, PhD2 and Judith Sangl, MPH3

2 Division of Intramural Research, National Center for Health Services Research and Health Care Technology Assessment 5600 Fishers Lane, Parklawn Building, Room 18A-55, Rockville, MD 20857
3 Office of Research, Health Care Financing Administration 6325 Security Boulevard, 2B14 Oak Meadows, Baltimore, MD 21207


   Abstract

The 1982 National Long-Term Care Survey and Informal Caregivers Survey provided data for the first national estimates of informal caregivers to noninstitutionalized disabled elders. The descriptive profile confirmed previous research findings that informal caregivers are predominantly female, that a sizeable proportion is over age 65, and that a minority use formal services. There also was evidence for competing demands: 21% reported child care responsibilities, 9% indicated that they had quit their jobs, and 20% reported other work conflict.

Keywords: Informal care, Caregiving to aged


1 An earlier version of this paper was presented at the 32nd Annual Meeting of the American Society on Aging, San Francisco, CA, March, 1986. The authors are grateful for the programming assistance of Mark Guagliardo and Ase Sewall of Social and Scientific Systems, Inc., Bethesda, Maryland. The views contained in this paper are those of the authors and no official endorsement by the National Center for Health Services Research, the Health Care Financing Administration or the Department of Health and Human Services is intended or should be inferred.


Add to CiteULike CiteULike   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us    What's this?


This article has been cited by other articles:


Home page
J Aging HealthHome page
Y. G. Bachner, D. G. Karus, and V. H. Raveis
Examining the Social Context in the Caregiving Experience: Correlates of Global Self-Esteem Among Adult Daughter Caregivers to an Older Parent With Cancer
J Aging Health, October 1, 2009; 21(7): 1016 - 1039.
[Abstract] [PDF]


Home page
The GerontologistHome page
C. K. Holley and B. T. Mast
The Impact of Anticipatory Grief on Caregiver Burden in Dementia Caregivers
Gerontologist, June 1, 2009; 49(3): 388 - 396.
[Abstract] [Full Text] [PDF]


Home page
The GerontologistHome page
S. Cho, S. H. Zarit, and D. A. Chiriboga
Wives and Daughters: The Differential Role of Day Care Use in the Nursing Home Placement of Cognitively Impaired Family Members
Gerontologist, February 9, 2009; (2009) gnp010v1.
[Abstract] [Full Text] [PDF]


Home page
cfpHome page
M. J. Yaffe and B. J. Jacobs
Formation sur l'appui aux aidants naturels: Preconiser la participation du medecin de famille
Can Fam Physician, October 1, 2008; 54(10): 1364 - 1365.
[Full Text] [PDF]


Home page
West J Nurs ResHome page
L. Garand, M. A. Dew, B. Urda, J. H. Lingler, S. T. DeKosky, and C. F. Reynolds
Marital Quality in the Context of Mild Cognitive Impairment
West J Nurs Res, December 1, 2007; 29(8): 976 - 992.
[Abstract] [PDF]


Home page
J Aging HealthHome page
C. M. Castro, A. C. King, R. Housemann, S. J. Bacak, K. M. McMullen, and R. C. Brownson
Rural Family Caregivers and Health Behaviors: Results From an Epidemiologic Survey
J Aging Health, February 1, 2007; 19(1): 87 - 105.
[Abstract] [PDF]


Home page
J Aging HealthHome page
L. Fredman, S. Tennstedt, K. A. Smyth, J. D. Kasper, B. Miller, T. Fritsch, M. Watson, and E. L. Harris
Pragmatic and Internal Validity Issues in Sampling in Caregiver Studies: A Comparison of Population-Based, Registry-Based, and Ancillary Studies
J Aging Health, April 1, 2004; 16(2): 175 - 203.
[Abstract] [PDF]


Home page
Health Educ BehavHome page
M. P. Gallant
The Influence of Social Support on Chronic Illness Self-Management: A Review and Directions for Research
Health Educ Behav, April 1, 2003; 30(2): 170 - 195.
[Abstract] [PDF]


Home page
Journal of Applied GerontologyHome page
M. M. Franks, L. S. Pierce, and J. W. Dwyer
Expected Parent-Care Involvement of Adult Children
Journal of Applied Gerontology, February 1, 2003; 22(1): 104 - 117.
[Abstract] [PDF]


Home page
Qual Health ResHome page
D. Ciambrone
Informal Networks among Women with HIV/AIDS: Present Support and Future Prospects
Qual Health Res, September 1, 2002; 12(7): 876 - 896.
[Abstract] [PDF]


Home page
Home Health Care Management PracticeHome page
M. A. Liken
Managing Transitions and Placement of Caring for a Relative With Alzheimer's Disease
Home Health Care Management Practice, December 1, 2001; 14(1): 31 - 39.
[Abstract] [PDF]


Home page
Journal of Applied GerontologyHome page
C. V. Browne and K. L. Braun
When a Case Management Program Closes: Impact as Perceived by Frail Elders and Their Family Caregivers
Journal of Applied Gerontology, September 1, 2001; 20(3): 338 - 355.
[Abstract] [PDF]


Home page
Qual Health ResHome page
L. L. Pierce
Caring and Expressions of Spirituality by Urban Caregivers of People with Stroke in African American Families
Qual Health Res, May 1, 2001; 11(3): 339 - 352.
[Abstract] [PDF]


Home page
Journal of Applied GerontologyHome page
S. E. Jarrott, S. H. Zarit, M. A. P. Stephens, A. L. Townsend, and R. Greene
Effects of Adult Day Service Programs on Time Usage by Employed and Non-Employed Caregivers
Journal of Applied Gerontology, December 1, 2000; 19(4): 371 - 388.
[Abstract] [PDF]


Home page
AffiliaHome page
P. J. Kolb
Continuing to Care: Black and Latina Daughters' Assistance to Their Mothers in Nursing Homes
Affilia, November 1, 2000; 15(4): 502 - 525.
[Abstract] [PDF]


Home page
J Transcult NursHome page
J. H. Kim and S. L. Theis
Korean American Caregivers: Who are they?
J Transcult Nurs, October 1, 2000; 11(4): 264 - 273.
[Abstract] [PDF]


Home page
Journal of Applied GerontologyHome page
A. A. Atienza and M. A. P. Stephens
Social Interactions at Work and the Well-Being of Daughters Involved in Parent Care
Journal of Applied Gerontology, September 1, 2000; 19(3): 243 - 263.
[Abstract] [PDF]


Home page
J Health PsycholHome page
S. Wilcox, A. C. King, P. P. Vitaliano, and G. S. Brassington
Anger Expression and Natural Killer Cell Activity in Family Caregivers Participating in a Physical Activity Trial
J Health Psychol, July 1, 2000; 5(4): 431 - 440.
[Abstract] [PDF]


Home page
J Aging HealthHome page
S. S. Wallsten
Effects of Caregiving, Gender, and Race on the Health, Mutuality, and Social Supports of Older Couples
J Aging Health, February 1, 2000; 12(1): 90 - 111.
[Abstract] [PDF]


Home page
J Aging HealthHome page
D. A. Wolf
The Family as Provider of Long-Term Care: Efficiency, Equity, and Externalities
J Aging Health, August 1, 1999; 11(3): 360 - 382.
[Abstract] [PDF]


Home page
J Aging HealthHome page
R. J. V. Montgomery
The Family Role in the Context of Long-Term Care
J Aging Health, August 1, 1999; 11(3): 383 - 416.
[Abstract] [PDF]


Home page
West J Nurs ResHome page
C. S. Teel, A. N. Press, C. L. Lindgren, E. G. Nichols, C. S. Teel, and A. N. Press
Fatigue among Elders in Caregiving and Noncaregiving Roles
West J Nurs Res, August 1, 1999; 21(4): 498 - 520.
[Abstract] [PDF]


Home page
West J Nurs ResHome page
M. Coe and A. Neufeld
Male Caregivers' Use of Formal Support
West J Nurs Res, August 1, 1999; 21(4): 568 - 588.
[Abstract] [PDF]


Home page
Journal of Applied GerontologyHome page
D. J. Pedlar and K. A. Smyth
Introduction: Caregiver Attitudes, Beliefs, and Perceptions About Service Use
Journal of Applied Gerontology, June 1, 1999; 18(2): 141 - 144.
[PDF]


Home page
Journal of Applied GerontologyHome page
M. Stommel, C. E. Collins, B. A. Given, and C.W. Given
Correlates of Community Service Attitudes Among Family Caregivers
Journal of Applied Gerontology, June 1, 1999; 18(2): 145 - 161.
[Abstract] [PDF]


Home page
Journal of Applied GerontologyHome page
B. Miller and S. Mukherjee
Service Use, Caregiving Mastery, and Attitudes Toward Community Services
Journal of Applied Gerontology, June 1, 1999; 18(2): 162 - 176.
[Abstract] [PDF]


Home page
Journal of Applied GerontologyHome page
D. M. Bass, L. S. Noelker, and C. A. McCarthy
The Influence of Formal and Informal Helpers on Primary Caregivers' Perceptions of Quality of Care
Journal of Applied Gerontology, June 1, 1999; 18(2): 177 - 199.
[Abstract] [PDF]


Home page
J Health PsycholHome page
C. Lee
Health, Stress and Coping among Women Caregivers: A Review
J Health Psychol, January 1, 1999; 4(1): 27 - 40.
[Abstract] [PDF]


Home page
Qual Health ResHome page
S. Forbes and N. Hoffart
Elders' Decision Making Regarding the Use of Long-Term Care Services: A Precarious Balance
Qual Health Res, November 1, 1998; 8(6): 736 - 750.
[Abstract] [PDF]


Home page
Med Care Res RevHome page
C. Harrington, H. Carrillo, J. Mullan, and J. H. Swan
Nursing Facility Staffing in the States: The 1991 to 1995 Period
Med Care Res Rev, September 1, 1998; 55(3): 334 - 363.
[Abstract] [PDF]


Home page
J Aging HealthHome page
D. M. Bass, M. J. Mcclendon, P. F. Brennan, and C. Mccarthy
The Buffering Effect of a Computer Support Network on Caregiver Strain
J Aging Health, February 1, 1998; 10(1): 20 - 43.
[Abstract] [PDF]


Home page
J Aging HealthHome page
C. J. Farran, B. H. Miller, J. E. Kaufman, and L. Davis
Race, Finding Meaning, and Caregiver Distress
J Aging Health, August 1, 1997; 9(3): 316 - 333.
[Abstract] [PDF]


Home page
J Aging HealthHome page
M. P. Gallant and C. M Connell
Predictors of Decreased Self-Care among Spouse Caregivers of Older Adults with Dementing Illnesses
J Aging Health, August 1, 1997; 9(3): 373 - 395.
[Abstract] [PDF]


Home page
J Aging HealthHome page
C. J. Wehilatch, L. F. Feinberg, and D. S. Sebesta
Depression and Health in Family Caregivers: Adaptation over Time
J Aging Health, May 1, 1997; 9(2): 222 - 243.
[Abstract] [PDF]


Home page
J Aging HealthHome page
L. Fredman and M. P. Daly
Weight Change: An Indicator of Caregiver Stress
J Aging Health, February 1, 1997; 9(1): 43 - 69.
[Abstract] [PDF]


Home page
J Aging HealthHome page
M. Mickus, M. Stommel, and C. W. Given
Changes in Living Arrangements of Functionally Dependent Older Adults and their Adult Children
J Aging Health, February 1, 1997; 9(1): 126 - 143.
[Abstract] [PDF]


Home page
West J Nurs ResHome page
C. Padula
Older Couples' Decision Making on Health Issues
West J Nurs Res, December 1, 1996; 18(6): 675 - 687.
[Abstract] [PDF]


Home page
J Aging HealthHome page
J. B. McKinlay, S. L. Crawford, and S. L. Tennstedt
The Everyday Impacts of Providing Informal Care to Dependent Elders and their Consequences for the Care Recipients
J Aging Health, November 1, 1995; 7(4): 497 - 528.
[Abstract] [PDF]


Home page
J Aging HealthHome page
M. I. Wallhagen and W. J. Strawbridge
My Parent--Not Myself: Contrasting Themes in Family Care
J Aging Health, November 1, 1995; 7(4): 552 - 572.
[Abstract] [PDF]


Home page
J Aging HealthHome page
W. Max, P. Webber, and P. Fox
Alzheimer's Disease: The Unpaid Burden of Caring
J Aging Health, May 1, 1995; 7(2): 179 - 199.
[Abstract] [PDF]


Home page
J Aging HealthHome page
A. C. Mui
Perceived Health and Functional Status among Spouse Caregivers of Frail Older Persons
J Aging Health, May 1, 1995; 7(2): 283 - 300.
[Abstract] [PDF]


Home page
J Aging HealthHome page
F. Fuller-Jonap and W. E. Haley
Mental and Physical Health of Male Caregivers of a Spouse with Alzheimer's Disease
J Aging Health, February 1, 1995; 7(1): 99 - 118.
[Abstract] [PDF]


Home page
J Aging HealthHome page
A. E. Scharlach, M. C. Runkle, L. T. Midanik, and K. Soghikian
Health Conditions and Service Utilization of Adults with Elder Care Responsibilities
J Aging Health, August 1, 1994; 6(3): 336 - 352.
[Abstract] [PDF]


Home page
J Aging HealthHome page
B. A. Given, C. W. Given, M. Stommel, and C.-S. Lin
Predictors of Use of Secondary Carers Used by the Elderly Following Hospital Discharge
J Aging Health, August 1, 1994; 6(3): 353 - 376.
[Abstract] [PDF]


Home page
J Aging HealthHome page
J. D. Kasper, U. Steinbach, and J. Andrews
Caregiver Role Appraisal and Caregiver Tasks as Factors in Ending Caregiving
J Aging Health, August 1, 1994; 6(3): 397 - 414.
[Abstract] [PDF]


Home page
J Aging HealthHome page
K. M. Skinner, S. L. Tennstedt, and S. L. Crawford
Do Characteristics of Informal Caregivers Affect the Length of Hospital Stay for Frail Elders?
J Aging Health, May 1, 1994; 6(2): 255 - 269.
[Abstract] [PDF]


Home page
J Aging HealthHome page
D. E. Biegel, D. M. Bass, R. Schulz, and R. Morycz
Predictors of In-Home and Out-of-Home Service Use by Family Caregivers of Alzheimer's Disease Patients
J Aging Health, November 1, 1993; 5(4): 419 - 438.
[Abstract] [PDF]


Home page
West J Nurs ResHome page
C. B. Scott
Circular Victimization in the Caregiving Relationship
West J Nurs Res, April 1, 1993; 15(2): 230 - 245.
[PDF]


Home page
Arch Fam MedHome page
G. D. Cohen and V. Cahan
Older Women's Health: Avoiding a Tragedy of Mythic Proportions
Arch Fam Med, April 1, 1993; 2(4): 361 - 363.
[Abstract] [PDF]


Home page
JAMAHome page
Council on Scientific Affairs
Physicians and Family Caregivers: A Model for Partnership
JAMA, March 10, 1993; 269(10): 1282 - 1284.
[Abstract] [PDF]


Home page
J Aging HealthHome page
A. M. Jette, S. L. Tennstedt, and L. G. Branch
Stability of Informal Long-Term Care
J Aging Health, May 1, 1992; 4(2): 193 - 211.
[Abstract] [PDF]


Home page
JAMAHome page
C. Harrington, C. Cassel, C. L. Estes, S. Woolhandler, D. U. Himmelstein, and the Working Group on Long-term Care Program Design
A National Long-term Care Program for the United States: A Caring Vision
JAMA, December 4, 1991; 266(21): 3023 - 3029.
[Abstract] [PDF]


Home page
Arch Intern MedHome page
K. Steel
Home Care for the Elderly: The New Institution
Arch Intern Med, March 1, 1991; 151(3): 439 - 442.
[Abstract] [PDF]


Home page
J Aging HealthHome page
S. L. Tennstedt, L. M. Sullivan, J. B. McKinlay, and R. B. D'Agostino
How Important is Functional Status as a Predictor of Service Use by Older People?
J Aging Health, November 1, 1990; 2(4): 439 - 461.
[Abstract] [PDF]


Home page
J Aging HealthHome page
T. M. Kashner, B. Krompholz, C. McDonnell, J. Magaziner, and B. Schumann
Acute and Custodial Care among Impaired Aged
J Aging Health, February 1, 1990; 2(1): 28 - 41.
[Abstract] [PDF]


Home page
J Aging HealthHome page
G. T. Deimling, D. M. Bass, A. L. Townsend, and L. S. Noelker
Care-Related Stress: A Comparison of Spouse and Adult-Child Caregivers in Shared and Separate Households
J Aging Health, February 1, 1989; 1(1): 67 - 82.
[Abstract] [PDF]



Disclaimer: Please note that abstracts for content published before 1996 were created through digital scanning and may therefore not exactly replicate the text of the original print issues. All efforts have been made to ensure accuracy, but the Publisher will not be held responsible for any remaining inaccuracies. If you require any further clarification, please contact our Customer Services Department.